Throughout the Connectathon WEEK, meetings, workshops, and roundtables will bring together stakeholders to explore implementation challenges, share experiences, and advance ongoing initiatives at both European and international levels.
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x-SHARE WP4 Workshop: Connecting primary and secondary use of data in the EHDS: creating the conditions for real data fluidity.
Date: March 24
Time: 9.00 – 12,30 (With a 15 minute coffee break).
The current healthcare data ecosystem remains fragmented, with limited alignment between clinical, research, and public health data standards. The European xShare project addresses these issues by linking EHDS1 (primary use) and EHDS2 (secondary use). It documents "only once" practices in four EU Member States—approaches that aim to reuse clinical data for secondary purposes. While fully integrated infrastructures show potential, challenges remain around semantic quality, provider buy-in, and resistance from data providers especially if multiple parallel data collection systems remain operational.
The workshop is open free of charge to any person interested upon prior registration.
Both physical and remote participation is possible.
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IPS Summit - hosted by the Joint Initiative Council for Global Health Informatics Standardization (JIC)
Date: March 27
Time: 8.00 – 12,00
The Joint Initiative Council is pleased to announce a special meeting to discuss global governance of the International Patient Summary, to be held in conjunction with the IHE Europe Connectathon Week. The IPS Summit will meet on Friday, March 27, 2026 @ 08:00-12:00 CET, on site at the EGG. Connectathon Week participants are invited and encouraged to attend.
The purpose of the Summit will be to continue discussions regarding global IPS governance, as set out in the 2024 JIC discussion paper “The Future of IPS as a Global Public Good”. This meeting will target a broad array of stakeholders that were specifically called out in the discussion paper (SDOs, governments, vendors, clinicians, healthcare delivery organizations, etc.). Holding the meeting in Europe will also encourage attendees that were not able to attend the first Summit held last Fall in Canada.
Connectathon Week participants that have an interest in global IPS governance are encouraged to attend. A separate registration is required (at this link), although there is no additional cost to attend this event.
Meeting hosts:
Robert Stegwee (CEN representative to the JIC, IPSCC Chair) robert@trace-health.nl
Mike Nusbaum (IHE International representative to the JIC) michael@mhnusbaum.com
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